As the Head of Patient Advocacy at Spark Therapeutics, Amy Fisher is responsible for building and sustaining relationships with patient advocacy organizations aligned with Spark Therapeutics’ disease areas of interest and leading a team committed to differentiated community engagement and empowerment through gene therapy research education. Amy brings over two decades’ experience in rare diseases to her current role, from clinical care in academic medicine, to medical affairs and patient advocacy roles in industry. While Amy’s depth of experience is greatest in the lysosomal storage disorders (LSD) communities, she has also worked with communities focused on hereditary angioedema, epidermolysis bullosa, Prader-Willi syndrome, Huntington’s disease, inherited retinal diseases and specific rare liver conditions. She is passionate about ensuring the patient perspective and experience is valued throughout the drug development lifecycle. Amy earned a B.S. in Biology (Genetics and Developmental Biology, honors in Biochemistry and Molecular Biology) from Penn State University, and an M.S. in Human Genetics (Genetic Counseling) from the University of Michigan. She is a board-certified genetic counselor by the American Board of Genetic Counseling. | I am board-certified in Emergency Medicine with a 20-plus year background in both acute care medicine and in the development and commercialization of technology solutions for health and Pharma. I am currently the CEO and co-founder of CarePortMD, a technology-based care coordination service that leverages telemedicine and live care navigators to improve patients' access to low-cost, integrative care.
CarePortMD transforms health and wellness destinations into collaborative care hubs, where patients can obtain physical examinations, blood testing, EKGs and monitoring to facilitate diagnosis and treatment by a growing number of doctors, specialists, and clinical service providers who can connect remotely to the CarePort. Furthermore, upon completion of an encounter, patients have the added benefit of being able to fill their prescriptions on site at the pharmacy.
CarePortMD allows doctors and specialists to maintain continuity of care for their patients without the overhead of keeping an office open after hours and on holidays. For those times when a doctor is unavailable, another CarePortMD provider fills in. Changes made to care plans are kept transparent to the referring doctors through the secure CarePortMD platform. A primary mission of CarePortMD is to align independent existing clinical services in a region to enable truly patient-centric care on an interoperable platform.
Specialties: Emergency Medicine and Trauma, EMS medical direction, aviation medicine, molecular medicine and signal transduction, medical multimedia communications, clinical research. | Matt has been bringing technology innovations to Life Sciences for over 20 years. A software engineer by trade, Matt began working with large pharmaceutical companies while working at Microsoft in the early 2000’s. This eventually led to an entrepreneurial journey where he founded NextDocs in 2006, a venture backed software company which grew to be a global leader in clinical, quality and regulatory document management across the US, Europe and Asia. Aurea Software acquired NextDocs in 2015 and Matt continued to serve as the General Manager of their Life Sciences business unit. In 2020 Matt became CEO of Trialbee, a company dedicated to creating the future of patient matching and enrollment for clinical trials through disruptive SaaS products. Matt is a recognized thought leader on technology innovations in Life Sciences and frequent speaker at conferences, including keynotes, at events such as Drug Information Association (DIA), Boston Society’s Applied Pharmaceutical Software, Microsoft’s Life Science Innovation Forum, ShareFEST and GR8 Philadelphia. Matt was a 2013 recipient of Philadelphia Busines Journal’s 40 Under 40, SmartCEO Magazine’s Philadelphia Executive Management Award in 2011 and served on Microsoft’s Partner Advisory Council for Office/SharePoint from 2008 – 2015. |
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